Angel's Medical Journal

Before I start, in late Feb I got COVID. That marks my second infection. I got concerned when I began experiencing brain fog and took a test. Positive. It started with three DAYS of severe, nonstop migraine.
It lasted the full two weeks and knocked me out of school for the time. Luckily I'm back now, still catching up...
But that's not the important bit.


I saw my new rheumatologist! The bloodwork results are in and my lymphocytes are high (as literally always), my liver function is a little low (this is new but it's probably just my drugs as my cocktail has gotten significantly larger), and I'm positive for a protein that erodes joints. My ANA is still positive, but I don't know if it's increased or decreased.

I've had my fibromyalgia confirmed, and she's suspecting I may have early stage rheumatoid arthritis. My mom is also showing signs, and my abuela also had this (thank you for not telling me MOM), so it's looking likely.

All my fucking white blood cells are attacking my joints! Probably, anyway. They're attacking SOMETHING.

I'm on a run of steroids to see if I respond, as if I react (which I am), it confirms I'm autoimmune. I've been almost pain-free for nearly this whole week I've been on them. Very high-energy and happy! I took the first of my last two doses today, and the exhaustion is coming back. I'll miss feeling how I did when I was on the higher doses. If that's what normal feels like, I want that every day of my life.

Hopefully immunosuppressants will do that for me.

We're back from Florida. My GP has suggested magnesium and potassium supplements to rule out an inbalance causing my leg issues. But my mom and I both caught a horrific cold on the 1st.
I'm so fucking tiiiired. My fever is through the roof but I'm flipping between being hot as hell and cold as fuck.

Scythe PHIGHTING! release sooner so I can ignore my issues pleeeeaseeeee

On the 23rd my legs locked up the worst they ever have. It was throbbing pain from the knees down and the muscles lock up making movement difficult and painful. I couldn't stand for more than 2 minutes without suffering about it. My feet were blue. I was miserable at 4 AM, when the pain was the worst, so much I was considering going to the ER.

They still hurt, just not as bad. My bad knee is getting the brunt of it. When I helped my mom pack a little bit today, I lost feeling in my ankles and feet. I don't trust myself walking, though.

Guess I'll be in a wheelchair when we get to the airport...

I LIVED BITCH

Got colonoscopy done. I'm probably allergic to something in the first part of the prep they gave it, it gave me awful full body pain.
I'm out and I'm good now though. Just very tired.

Nothing too serious. Some acid damage and some inflammation. I just need to lay off the sodas, and my meds may be causing a lot of acidity too so I'm expecting to get more meds to help with that.

Feelin' a ton better after purging a lot of backup. All the pain related to constipation is gone, but now I'm stuck with the sharp pain sites on my lower abdomen. My antibiotics are in- they're these HUGE pills, so we'll see if that clears any of it up. It's probably not an infection, knowing what I know now, but may as well be safe than sorry. I alllways show inflammatory markers, that's just undiagnosed immune disorder baby!!!

My annual with my GP brought to light some potential causes the ER didn't. I had massive high levels of... something important in the digestive area, which the ER failed to tell me. Turns out it's PROBABLY my gallbladder having issues, maybe causing a backup into my pancreas and thus making my whoooole lower digestives unhappy. My colon is fucking PISSED but when is it not? I've got IBS, that thing always hurts.

After eating a little in the morning I immediately had the worst pain yet. I attempted to take a hydrocodone for it and immediately coughed it up. Trying again, I threw it up as well as a lot of the water I'd just drank. Begged my mom to take me back to the ER, but I had to wait till my abuela's appointment with the nurse was through- she ran an hour late. I curled up in my bed and suffered- lower back pain, dizziness, stomachache, with all the previous symptoms from before. I was miserable.

ER was very populated and we waited another 5-6 hours to get called back. Presented with a resting heart rate of 130 BPM, higher than even my normal tachycardia rhythm. Nearly passed out in the lobby after, breaking out in a massive cold sweat.



Felt better after a nap, but was starving. We waited... and waited...

Finally got called back at around midnight. Xray showed constipation, urinanalysis showed an infection. They gave me morphine again, and despite me saying it did nothing for me and the nurse saying it wouldn't burn because he diluted it... it still burned, and it still did nothing.



It's assumed it's just really bad constipation. Prescribed antibiotics and a strict regiment of powerful laxatives... They make the visocity of water horrible, but my mom and I figured mixing them into smoothies may take away the issue. We'll try tomorrow.

Hopefully this is the issue and it's not just another misdiagnosis. If I need to go back, we're gonna try a hospital more close to the city...

Got rushed to the ER on the 4th for severe abdominal pain. Probably something PCOS related but they found nothing. I was dehydrated even after they pumped an entire bag of saline into me and I've been dehydrated ever since. Nothing quenches it.

Blood tests, urinalysis, and a CT scan showed nothing. Everything looked fine, as always. Medical staff were stumped again. So after filling me with saline, zofran, morphine (which I don't respond to, turns out), and eventually hydrocodone-acetaminophen, I was sent home with a hydrocodone-acetaminophen prescription. But heyyy I still got good veins I guess, but it doesn't stop me from bleeding like a motherfucker every time they stab me to get in there.



Three days later and I still feel like shit. I cannot physically go downstairs and leaving my room is difficult as is as I've gotten dizzy lately. Opiates get rid of most of the pain, not all of it, but it also makes me super dazed, tired, and sometimes incoherent (that's also the exhaustion). My sleep is super fucked and I'm on a pattern where I'm really only asleep when the drugs knock me out.

Shit hurts. It's since morphed into a sharp pain in my lower left side with a smaller spot of sharp pain on the right. The first day using the restroom nearly made me faint each time.

I'm genuinely surprised and mildly upset that I wasn't brought into inpatient for monitoring. Admittedly I should probably go back because I'm not improving. It's just a matter of getting my mom to listen to me because she's the one who drives. But she wants me to wait two more days or something.